| Name | Title | Contact Details |
|---|---|---|
Morgan Roth |
Chief Marketing Officer | Profile |
Veronika Likht |
Vice President, Treasury Services | Profile |
The National Organization for Rare Disorders, a 501(c)(3) organization, is an independent patient advocacy organization dedicated to helping individuals with rare diseases and the organizations that serve them. NORD, along with its 280 patient organization members, is committed to the identification, treatment, and cure of rare disorders through programs of education, advocacy, research, and patient support services. NORD serves all stakeholders in the rare disease community, including patients and their families, patient organizations, researchers, medical professionals, medical students, and companies developing orphan products. NORD also works closely with many government agencies, most notably the National Institutes of Health (NIH) and the Food and Drug Administration (FDA). All NORD programs are focused on one ultimate goal -- to improve the lives of individuals and families affected by rare diseases. NORD is the official sponsor of Rare Disease Day in the U.S., an observance day held on the last day of February each year worldwide. Its goals are to raise awareness for rare diseases and improve access to treatment and medical representation for individuals with rare diseases and their families.
APT Foundation is a New Haven, CT-based company in the Non-Profit sector.
Youth Lifeline America is a Chesterfield, MO-based company in the Non-profit sector.
Special Olympics Inc of Massachusetts is a Danvers, MA-based company in the Non-Profit sector.
Boys & Girls Village, Inc. was founded as the original ""Boys Village"" in 1942 by New Haven County High Sheriff J. Edward Slavin and Daniel J. Adley, a principal in a major Northeast trucking firm based in New Haven. Founded as a ""work farm for first-offenders,"" the agency has served a coed population of boys and girls since the mid-1980s and we changed our name to ""Boys & Girls Village"" in June 2002. Today, Boys & Girls Village is a federal IRS approved 501 (c) 3 not-for-profit agency licensed by the Connecticut Department of Children and Families (DCF) for our residential and therapeutic treatment components, and by the Connecticut Department of Education for our Day School for children with special educational needs. Referrals are received from DCF, managed care companies and from public school systems. The clients of Boys & Girls Village are children in crisis or children with learning difficulties who have experienced rejection, failure or abuse. Through the years, the agency has evolved into a leading therapeutic and learning facility offering residential shelter, clinical, after-school, counseling, special educational, foster & adoptive programs, family support services, and day programs for children and their families.