| Name | Title | Contact Details |
|---|---|---|
Heidi Pilloud |
Chief Financial Officer | Profile |
Chito Padilla |
Vice President of Global Support and Award Management | Profile |
Eve Angerosa |
Vice President of Communications and Outreach | Profile |
The National Organization for Rare Disorders, a 501(c)(3) organization, is an independent patient advocacy organization dedicated to helping individuals with rare diseases and the organizations that serve them. NORD, along with its 280 patient organization members, is committed to the identification, treatment, and cure of rare disorders through programs of education, advocacy, research, and patient support services. NORD serves all stakeholders in the rare disease community, including patients and their families, patient organizations, researchers, medical professionals, medical students, and companies developing orphan products. NORD also works closely with many government agencies, most notably the National Institutes of Health (NIH) and the Food and Drug Administration (FDA). All NORD programs are focused on one ultimate goal -- to improve the lives of individuals and families affected by rare diseases. NORD is the official sponsor of Rare Disease Day in the U.S., an observance day held on the last day of February each year worldwide. Its goals are to raise awareness for rare diseases and improve access to treatment and medical representation for individuals with rare diseases and their families.
Florida Healthy Kids Corp is a Tallahassee, FL-based company in the Non-Profit sector.
The Leon Levy Foundation, based in New York, is a private philanthropic foundation, created in 2004 from the estate of Leon Levy, a financier who died in 2003 at the age of 77. Leon Levy had a passion for expanding knowledge and believed in the power of ideas and a just and equitable society. This broad humanism also defined his philanthropy. The Leon Levy Foundation, founded in 2004, is a private, not-for-profit foundation created from his Estate. The Foundation endeavors to continue Leon Levy’s philanthropic legacy and to build on his vision, encouraging and supporting excellence in six broad areas: Understanding the Ancient World; Arts and Humanities; Preservation of Nature and Gardens; Brain Research and Science; Human Rights; and Jewish Culture.
Alliance for the Chesapeake Bay is a Annapolis, MD-based company in the Non-Profit sector.
For 40 years, Hope Haven has been serving people with disabilities in the Midwest and has a record of successfully developing and implementing new services in response to needs, today we have 22 programs in 42 communities. We are accredited and were